My darling daughter, you were not defective.

To my sweet Aria girl,

I know when people talk about your CCAM, they often say you had a birth defect. Your Dad and I say it too. Sometimes, it’s so much easier to say you had a severe birth defect than it is to explain the ins and outs of congenital cystic adenomatoid malformation, hydrops, and pulmonary hypoplasia. Most people have no idea what those words mean. In fact, spellcheck has underlined most of those words in red because it doesn’t recognize them.

But to be honest with you, I don’t like the word “birth defect.” I dislike the way it implies you were defective. If you look up the word “defect” in a dictionary, it is defined as a shortcoming, imperfection, or lack. If you look up that word in a thesaurus, you’ll see synonyms like flaw, imperfection, deficiency, and weakness.

But my darling, you were nothing short of perfection. None of those words define you, not even a little bit. You were fearfully and wonderfully made. Your spirit is beautiful, and your undying presence is captivating. You stole my heart before I felt the flutter of your first kick. You commanded my love without even speaking a single word. Your brief life has impacted so many people, and your legacy continues to grow. You were powerful, my angel, and you still are.

You did not lack a single thing. It was our world that lacked the ability to handle your uniqueness. You were created for far more than we could provide. You were not born with a defect, you were born with great purpose.

All my love,
Mom

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