Goodbye 2017, Hello 2018.

It’s officially that time of year. We’ve swapped out our Christmas greetings with, “Happy New Year!” Shelves are being stocked with 2018 calendars, and there’s talk of New Years resolutions everywhere you look.

Last year, as we rang in 2017, we were so hopeful that this year would be one of redemption. We had been praying that we would be blessed with a sibling for Aria for a few months before the new year, and it felt like our time was coming. But month after month went by, winter turned to spring, spring turned to summer, and still no baby. Then one doctor’s appointment turned into ten, and test after test showed nothing conclusive. We were confused, they were confused, so my doctor made a shot in the dark, which led to me holding a positive pregnancy test on an early August morning. And then that turned into me in my doctor’s office hearing things like “I’m sorry.” And “this happens all the time.” As I struggled to cope with the reality that we had miscarried.

But we did as we’ve had to do with every single heartbreak in the last two years, we dried our tears, held onto each others hands, and kept going. We found new doctors, better doctors, who ran even more tests. We talked about options, started saving, and came up with a plan. So as we welcome 2018, we are embarking on another adventure. Hopefully one thousand steps closer to growing our family once again.

And as hopeful as we are, I will admit that the spending the last year fighting infertility has been hard. So unbelievably hard. But we’re pushing back as much as we can.

We also have a project of a different kind that we’ll be unveiling this summer, and are so anxiously excited to share it. I wish I could say more about it, so I could fill this paragraph with more detailed anticipatory statements, but it’s going to be good. So very good. And I can’t wait for you to see it.

Of course, the real big day for us isn’t actually New Years Day. It’s January 2nd. Aria’s birthday. This coming year, she would have been turning two. I’m even less ready for it this year than I was last year. It doesn’t get any easier, or simpler, or less agonizing. I can’t stop thinking about all that we’re missing now. Her hair would be so long, because I know I would have refused to cut a single centimeter of those gorgeous dark locks. She’d be communicating, and bossing us around, and likely giving validity to the term, “the terrible twos.” But we’d love it all, and sweet Aria would be loving us back tenfold. She’d be blossoming, and growing, and thriving more and more each day.

God, I miss her.

All in all, 2017 has been quite a challenge. But there’s been such an undeniable bright spot in it, Lana. Our sweet dog who also turns two in January. She came to us at the start of this year and has made every hardship much more bearable. 2017 also gave Brian a very unexpected work trip to Disneyland, which I was able to tag along for, so with the combination of those things I suppose I can’t say it was the worst year.

But 2018 will be a better year. At least that’s what I’m hoping.

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December 23, 2015

Today’s post is a retelling of the events of this day, exactly two years ago.

We woke up the day before Christmas Eve with a game plan. Brian would come home from work early so he could accompany me to my appointment with the fetal specialist to check on Aria’s development and make sure her tumor wasn’t getting any bigger. It had already increased in size once, but everyone was fairly confident that it would stop growing and become less of an issue as Aria continued to grow in the womb. There were still concerns, but mostly there was hope.

We were planning on leaving Florida and flying to Maryland early the next morning (Christmas Eve), to spend the holiday with our families and return just before the New Year. Since Aria’s condition is researched and treated most often at the Children’s Hospital of Philadelphia (CHOP), and because we would already be on the east coast visiting family for Christmas, our team agreed it would be a good idea to set up a consult with them during our trip. So we made an appointment at CHOP on Dec. 28, 2015, perfectly squeezed in before our flight back to Florida a few days later. It would be helpful to have them be familiar with us, and Aria’s specific case if she got worse and needed more intensive care at birth. This was still mostly a precaution, as we were continuously assured that based on statistics of other babies with her condition, Aria would be just fine.

With our schedule jam packed with doctors appointment’s with Fetal specialists and my OB/GYN over the last few weeks, we had been too frazzled to pack or shop for Christmas gifts. So I spent the first half of the day scrambling to finish off my Christmas list, not an easy task with a large pregnant belly in the way. When Brian got home, and it was time to head to my appointment I still had a few things left to buy. Luckily, the hospital was across the street from the mall so planned to make a pit stop there right after.

We were the last appointment of the day before the office shut down for Christmas Eve & Christmas. You could feel the excitement in the air as the staff started to close up the office. They just had to do our ultrasound, and we could all get on with our holiday festivities.

The ultrasound started off very routine, she let us listen to Aria’s heartbeat which was nice and strong. She gave us a good side profile of her face, and she was adorable as ever. Then she scanned her belly, and I saw her write a word that I had recognized from an online support group for babies with Aria’s diagnosis, “ascites.” My heart sank, suddenly this was looking like the worst case scenario we never imagined would happen. She remained calm, and said the doctor would be in shortly to explain our images.

As she walked out of the room and the door shut behind her, I looked at Brian and said, “She has hydrops.” Always the optimist he responded, “You don’t know that, we don’t know what we are looking at. Just wait for the doctor.” Then I told him I saw her write ascites, and what that word meant – she had fluid in her belly.

Before that conversation could continue, Dr. W walked in. “So tell me what you already know about the baby’s condition.” This seemed like an odd question, but I replied with everything I had been told. He nodded, then grimaced, then tried to hide the concern on his face. I could tell he was fumbling with his words in his head. He confirmed my suspicions, Aria was showing signs of hydrops.
“Do you still have that appointment in Philadelphia?”
“Yes.”
“Good. When is it?”
“The 28th.”
He grimaced again.
“We might need you to get there sooner. We might need you to go now.”
He asked the ultrasound tech to call the Children’s Hospital of Philadelphia (CHOP), so he could speak with a fetal specialist there and get their opinion. In the meantime, he brought us into a consultation room next to the nurses station. As we were walking into the room, a nurse informed Dr. W that CHOP is an hour ahead of our time zone and their offices had already closed. She didn’t know if we would get ahold of anyone.

This is when chaos erupted around us. Every nurse was told to grab a phone and start dialing until they found someone. This was the moment I fully understood the seriousness of the situation. We didn’t have time. It couldn’t wait. We listened to the frantic clicking of the buttons on the phones in the lobby, and after fifteen minutes of this it felt like we were fighting a losing battle. Then a nurse shouted, “Dr. W, I got a cell phone number for Dr. K in Philadelphia!”

Relief washed over me. Hope returned. Now we were getting somewhere. Dr. W called Dr. K and I could hear them coming up with a plan. Brian assured me everything would be fine, we now had a very experienced doctor in Philadelphia on our side.

Dr. W finally came into the consultation room to inform us of their plan. We needed to get an injection of steroids, because in previous studies it had been shown to reverse hydrops and prevent these tumors from becoming any larger. He explained that the injections are given in two parts, and they need to be done 24 hours apart. So once we got the first one, we had to be in Philadelphia within 24 hours for the second injection. It was currently 6 PM. Our flight was scheduled to arrive in Baltimore the next day at 1pm, so we had plenty of time to drive to Philadelphia in time for the next injection. Everything was falling into place.

After receiving the first dose, we decided to grab dinner at Olive Garden. We ordered way too much food because both of us were feeling incredibly stressed and needed to eat our feelings. As we ate, I suddenly felt like I couldn’t inhale as deeply or lean all the way forward because something was in the way. Then it dawned on me, Aria’s feet had reached my ribs. I marveled at this little developmental milestone, and took it as a good sign that despite her challenges she was still growing like a weed. Our little fighter was going strong.

By the time we completed our Christmas shopping at the mall and made the hour drive back to our house, it was nearly 11 PM. We had to be up at 4 AM for our flight the next day, and neither of us had packed our suitcases. We were both ready to crawl into bed and cry ourselves to sleep, but we had to get this done. So we started to pack, and this was when I lost it.

I grabbed a few maternity shirts, and started trying to decide how many I should bring. Suddenly I realized I didn’t know how long I would be in Philadelphia. I didn’t even know if I would be coming back before Aria was born. Should I pack regular clothes too, so I would have things to wear while Aria is in the NICU? I started grabbing armfuls of clothes from our closet and tossing them into my suitcase, and once it was totally full every ounce of heartache and fear that I had been suppressing over the last five weeks bubbled over and poured out me. I struggled to see through the hot tears pouring down my face as sobs escaped my lips. This whole situation was terrifying. How could this be happening?

Brian held it together as he consoled me, then helped me finish packing. The pack and play we got for Aria had arrived in the mail that afternoon, and we quickly set it up next to our bed so she would have a place to sleep that was close to us when she finally came home. Then we finally poured ourselves into bed. As I drifted off, I thought to myself, “This day has surely been the hardest day of my entire life.”

I didn’t know then that I would be repeating that thought many times over the next few days.

She could have been anything.

Today I saw a post on Instagram, asking moms who have lost little ones what they wondered about the futures they could have had. Specifically, what they could have been if they had the chance to grow into adulthood.

And I thought about Aria, and what she could have been, which took me right back to the thoughts and conversations I often had during my pregnancy.

It was very important to me that she grew up to believe she had the ability to be absolutely anything she wanted to be. I worried constantly about making sure we never placed invisible borders around her.

We often called her a princess, simply because she was our girl, and we’ve got a huge love for Disney. But I remember thinking I didn’t want to call her that too much, just in case she wanted to be a knight instead. Or a doctor. Or a veterinarian. Or an Artist. I never wanted her to believe she had to fit into a mold. I even remember having a hormonal moment about baby dolls, because I was frustrated that all the ones in the store had blonde hair and blue eyes. I was infuriated. One thing I knew for sure, with me being Korean with dark hair and brown eyes, and my husband also having dark hair and brown eyes, was that Aria would have dark hair and brown eyes. I was terrified of her growing up in a world where the standard of beauty was something other than the race she was, and features she had. I grew up that way, and I didn’t want it for her.

I wanted her to look at the world and see endless opportunity. So being here, on this side of heaven, living life without Aria in my arms, it feels as if the world has lost so much. She could have been absolutely anything. She could have been a revolutionary research scientist. She could have been the author of the next great American novel. She could have been the inventor of a life saving medical device. She could have painted a portrait to rival the Mona Lisa. She could have been a mother, raising children who would change the world just as she did. She could have been anything, and now we’ll never know.

I suppose that is why we’re so dedicated to doing good things in her honor. I know she would have been a world changer, and I’ve got to try to accomplish some of it in honor of the legacy she would have left, if only she had the chance.